In the third episode of The Kid in the Wheelchair, Jon talks about his experiences as a person with cerebral palsy as he was getting ready to graduate high school and head off to college. He talks about the process he and his family went through to search for the right University, the importance of finding proper accessibility, as well as finding sufficient on campus disability support systems to enable Jon to live as independently as possible. Jon talks about his fears, as this was his first time living completely on his own. It was truly a test of how independent he had become. Jon is also joined via phone call by his mother, Melissa Gilroy. She talks about her fears as a mother during this entire process and how she helped Jon in the early days of his transition to college by helping take notes for him and interview care staff. Jon and his mother also speak about the emotion of the day he first moved in to his dorm room at the University at Albany. Jon says he realized he was finally on his own and while difficult it was a welcome challenge. He goes on to talk about what classes were like for him, from the vulnerability of having to sit up on stage with the professor, to the academic accommodations he needed in order to thrive to the best of his ability in the academic environment. He talks about his academic successes and the doctors he proved wrong along the way.
In episode two of The Kid in the Wheelchair, Jon sits back down with his parents, Rick and Melissa Gilroy. They discuss the harrowing details of his childhood surgeries. From his first surgeries at the age of four to two major surgeries done it once at the age of eight, and having to say no to procedures along the way, Jon talks candidly with his parents about what went into their decision-making when saying yes or no to a procedure. They also talk about the intense traumas the entire family unit endured following Jon's most involved surgical procedure. From hallucinations and prison-like hospital settings to sleepless nights and fighting with doctors who believed none of what was happening was real, they bring you not only into their lives at the moment, but inside the hospital with never before seen family footage. Jon also ask his parents if they have any guilt from those tough decisions they had to make. He creates space for them to let go of that guilt and praises them for their decision-making as parents.
In the premier episode of The Kid in the Wheelchair, Jon sits down with his parents, Melissa and Rick Gilroy to discuss what it was like for them raising a child with cerebral palsy. No topic is off-limits. They cover everything from the dramatics of the day Jon was born three months premature and how and why he was born via C-section (cesarean section), to the doctor initially hiding his cerebral palsy diagnosis! Later on, his parents discuss the importance of being proactive as parents of a child with a disability. They pull back the curtain and lay bare the raw emotion every parent feels when their child receives a diagnosis of any kind. What does the future hold for my child? How do we as parents help them thrive and live to their fullest potential? From advocating for Jon's right to exist in the same spaces as his peers to the emotional rollercoaster that was watching him try his best to become more and more independent, Jon's parents lay it all out for you to see and amidst all the seriousness, Jon and his parents talk about the fun times, funny stories and great memories they've created along the way.
In this clip from The Kid in the Wheelchair Podcast, Jon talks about his first session with the school social worker in high school and how this was pivotal in the process of him coming to terms with his disability. He talks about things he's learned throughout his therapeutic journey including: the importance of validating and expressing your emotions as they are, understanding that true healing will come with challenges and the true gravity of just how immensely important we all are as human beings.